Things are going well. It’s been a busy week with lots of progress. We thought we would share some recent photos instead of a long post. Next stop, 7 pounds.
Archive for May, 2010
22 May
Holding Steady…
Not much has changed this week. Nathan continues to improve each day steadily. This infection was tough, but he’s packing on the pounds…yes, pounds. We’ll get some new pictures posted once he gets back to normal. Thank you again for all your prayers and encouragement.
17 May
A Good Day
Even though most of the day was a nervous waiting game, we ended up with a good day overall. The infected plastic device (or “ventricular reservoir” if you want to sound like a NICU parent), is now removed. He’s resting peacefully and seems to be turning a corner on this one. For good measure, we [...]
14 May
Accentuate the Positive
So after enjoying ten blissful days of post-ETV and reservoir placement surgery, once again, we’ve encountered a setback. They discovered yet another staph infection, this time in the cerebral fluid and due to the plastic device used as a reservoir. Nathan had a rough evening Thursday night but the doctors have him resting comfortably now. [...]
9 May
Giving Thanks to Mothers and Nurses
Today was Mother’s Day. This week was Nurse’s Week. It’s been a week to give thanks to so many things. We’re thankful that the neuro team tried the ETV before going to a shunt, because, so far so good. We have a long road ahead, but even if we didn’t yet win a battle, we’re [...]
4 May
See ya later ventilator…
Finally. After 2 weeks of intubation, they were able to ween him off today! He’s doing so much better now with his breathing. The nurses seem to think he just wasn’t a happy fellow with that tube and it was holding him back more than helping him. He’s proving them right.
3 May
A Detour
We woke up this morning preparing for a one-way road towards a life long relationship with neurosurgery. While the odds say this is still the most likely scenario, we were led on a surprising and welcome detour. After the entourage of nurses, technicians, and respiratory therapists rolled little Nathan through the 8 minute maze from [...]
2 May
Progress
Throughout this process, the most comforting thing for us has been a clear understanding that we’re moving forward and clarity about the direction we’re heading in. Even if that meant taking steps that we dread. Monday morning Nathan will have a procedure at Rady Children’s Hospital for the placement of a shunt. We were told [...]
